HOME >> BIOLOGY >> NEWS
NIH establishes Rare Diseases Clinical Research Network

To address the challenges inherent in diagnosing and treating rare diseases, the National Institutes of Health (NIH) announced today the establishment of the Rare Diseases Clinical Research Network. With $51 million in grant funding over five years from several NIH components,* the network will consist of seven Rare Diseases Clinical Research Centers (RDCRCs) and a Data and Technology Coordinating Center (DTCC).

"Funding research on rare diseases is a vital aspect of the NIH mission," said NIH Director, Elias A. Zerhouni, M.D. "By encouraging cooperative partnerships among the investigators at these centers, we hope to accelerate the development of diagnostics and treatments that will benefit these important patients."

The RDCRCs and the DTCC will be located at the following institutions:

  • Baylor College of Medicine, Houston, TX -- Rare Disease Clinical Research Center for New Therapies and New Diagnostics -- Dr. Arthur L. Beaudet

  • Boston University School of Medicine, Boston, MA -- Vasculitis Clinical Research Network -- Dr. Peter A. Merkel

  • Children's Hospital Medical Center, Cincinnati, OH -- Rare Lung Diseases Clinical Research Network -- Dr. Bruce C. Trapnell

  • Children's National Medical Center, Washington, DC -- Rare Diseases Clinical Research Center for Urea Cycle Disorders -- Dr. Mark L. Batshaw

  • The Cleveland Clinic Foundation, Cleveland, OH -- Bone Marrow Failure Clinical Research Center -- Dr. Jaroslaw P. Maciejewski

  • University of Rochester, Rochester, NY -- Nervous System Channelopathies Pathogenesis and Treatment -- Dr. Robert C. Griggs

  • Weill Medical College of Cornell University, New York, NY -- The Natural History of Rare Genetic Steroid Disorders -- Dr. Maria I. New

  • H. Lee Moffitt Cancer Center and Research Institute, University of South Florida, Tampa, FL -- The Data and Technology Coordinating Center -- Dr. Jeffrey P. Krisch
    '"/>


Contact: Joyce McDonald
info@ncrr.nih.gov
301-435-0888
NIH/National Center for Research Resources
3-Nov-2003


Page: 1 2 3 4

Related biology news :

1. Tufts University establishes $4 million dollar tissue engineering resource center
2. DFG establishes first German-Sino Research Training Group
3. DFG establishes 14 new research units
4. $8 million grant establishes program to uncover genetics of asthma
5. Hemocellular Therapeutics establishes licensing agreement with UNC, ECU
6. New research establishes genetic associations in hepatitis C
7. NSF establishes center for biophotonics at UC Davis
8. NIH funding establishes a chimpanzee sanctuary
9. Guyana establishes its first conservation concession
10. USDA establishes Honeybee Genetics and IPM Center
11. Scientist finds genetic clues to Alzheimers, establishes DNA bank for future studies

Post Your Comments:
*Name:
*Comment:
*Email:


(Date:6/23/2017)... ITHACA, N.Y. , June 23, 2017 /PRNewswire/ ... leader in dairy research, today announced a new collaboration ... reduce the chances that the global milk supply is ... dairy project, Cornell University has become the newest academic ... Supply Chain, a food safety initiative that includes IBM ...
(Date:5/6/2017)... 5, 2017 RAM Group , ... new breakthrough in biometric authentication based on a ... properties to perform biometric authentication. These new sensors are ... created by Ram Group and its partners. This sensor ... supply chains and security. Ram Group is a ...
(Date:4/13/2017)... Calif. , April 13, 2017 UBM,s ... York will feature emerging and evolving technology ... Both Innovation Summits will run alongside the expo portion ... speaker sessions, panels and demonstrations focused on trending topics ... largest advanced design and manufacturing event will take place ...
Breaking Biology News(10 mins):
(Date:10/11/2017)... ... October 11, 2017 , ... ... and pregnancy rates in frozen and fresh in vitro fertilization (IVF) ... maternal age to IVF success. , After comparing the results from the fresh ...
(Date:10/10/2017)... ... October 10, 2017 , ... For the second time ... US2020 STEM Mentoring Award. Representatives of the FirstHand program travelled to Washington, D.C. ... US2020. , US2020’s mission is to change the trajectory of STEM education in ...
(Date:10/10/2017)... (PRWEB) , ... October 10, 2017 , ... ... innovation and business process optimization firm for the life sciences and healthcare industries, ... conference in San Francisco. , The presentation, “Automating GxP Validation for Agile ...
(Date:10/9/2017)... ... October 09, 2017 , ... At its national board ... Stubbs, a professor in Harvard University’s Departments of Physics and Astronomy, has been selected ... member of the winning team for the 2015 Breakthrough Prize in Fundamental physics for ...
Breaking Biology Technology:
Cached News: