Chronically Ill Teens Turn To Internet For Peer Support, Researchers Report

A team of medical informatics and child life specialists at the Johns Hopkins Children's Center has met the challenge of providing peer support to seriously ill teenagers with an Internet service, Hopkins Teen Central. Hopkins Teen Central's creators say the service shows potential for wide use in hospitals nationwide.

Reporting on the project today at the 1999 Pediatric Academic Societies meeting in San Francisco, one of the Children's Center team said teenagers with such chronic diseases as cystic fibrosis (CF) become socially isolated because of their symptoms or treatments, making it difficult to arrange traditional, in-person support groups to address emotional and social needs.

According to Kevin Johnson, M.D., assistant professor of pediatrics at the Children's Center, Hopkins Teen Central is a virtual support group. The password-protected Web site links adolescent CF patients with one another and Children's Center clinical staff. The site consists of personalized patient profiles, question-and-answer pages, private pages, a group message board and reference information. Children's Center CF patients access the site through their personal computers or through WebTV devices provided by the hospital.

Hopkins Teen Central was developed by Russ Ravert, a child life specialist who focuses on enhancing the emotional and social well-being of Children's Center patients; social worker Andrea Everton; computer programmer George Ciervo; and Johnson, a medical informatics specialist.

The service was launched in September 1997 with 17 Children's Center CF patients. A one-year evaluation showed that each participant used the site an average of six times per month, and 24 percent logged in more than 12 times per month. Although users showed no increased knowledge of CF, or altered perceptions of their care, interactive events, such as scavenger hunts and hospital bingo, increased use of the site, and e-mail was use

Contact: Staci Vernick
Johns Hopkins Medical Institutions

Page: 1 2

Related medicine news :

1. Chronically ill kids put up defenses to hide depression
2. Teens present research findings at major international meeting
3. Teens struggle to find accurate, useful health information online
4. Teens more anxious than assumed
5. Teens second pregnancy rates lower with long-term contraceptives
6. Stress Hormone Tied To Depression And Conduct Disorder In Pregnant Teens
7. Teen Line Panel Of Six High School Students To Address The Issue Of Teens And Tolerance
8. Debilitating Body Image Disorder Often Begins In Teens; Likely To Be Missed
9. 500 Bay Area Women And Teens Will Attend UCSF Conference On Womens And Teen Health, Saturday March 20
10. Doctors Missing Chance To Help Teens Who Smoke
11. Black Teen-Agers With Severe Asthma Are Three Times More Likely Than White Teens To Be Steroid Resistant

Post Your Comments:

(Date:5/14/2020)... ... May 13, 2020 , ... The ... Center for Developmental Disabilities. , The vision of the Center for Developmental Disabilities ... the following values are embraced: Everyone is treated with dignity and respect. Individual ...
(Date:5/14/2020)... STEVENSVILLE, Md. (PRWEB) , ... May 13, 2020 , ... ... with the Centers for Medicare and Medicaid Services (CMS), DLA awarded Federal Resources a ... million gowns, and 64.4 million pairs of gloves to ensure the safety and well-being ...
(Date:5/11/2020)... SAN DIEGO (PRWEB) , ... May 11, 2020 ... ... donating 10 percent of all proceeds until May 31st directly to Intellihelp participants ... addition to its partnership with Intellihelp, Smilyn Wellness is offering a 30 percent ...
(Date:5/11/2020)... ... May 11, 2020 , ... ... Communications Commission (FCC) that it will continue to suspend involuntary disconnections from the ... eligibility through June 30, 2020. The FCC’s decision was made to ensure that ...
(Date:5/11/2020)... ... ... Genomenon announced a partnership with enGenome , which includes ... Interpretation platform . eVai users can now preview the number of published articles related ... Genomenon’s Mastermind is the world’s only comprehensive genomic search engine, connecting patient’s genomic data ...
Breaking Medicine News(10 mins):
(Date:5/21/2020)... ... 21, 2020 , ... In today’s news cycle we often hear things that ... hands with others; to avoid restaurants, movie theaters, concerts, sporting events or schools; or ... YoutubeTV or Prime Video subscriptions. But as things begin to return to normal Americans ...
(Date:5/21/2020)... ... May 21, 2020 , ... Sindledecker Dentistry ... had been closed due to the coronavirus pandemic and the practice was following ... office has remained open only for emergency needs and the staff, led by ...
(Date:5/21/2020)... ... May 21, 2020 , ... ... Massachusetts, founder/CEO of Burn with Kearns ( http://www.burnwithkearns.com ) and Beach Bod ... and wellness professional & competitive alpine skier Diana Healy. , https://www.voiceamerica.com/episode/123560/how-to-stay-active-during-the-pandemiclockdown ...
Breaking Medicine Technology:
Cached News: