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New report presents options for oversight of genetic testing of human embryos

A new report by the Genetics and Public Policy Center at Johns Hopkins University outlines policy options to address the scientific and ethical challenges raised by genetic testing of human embryos. The report will be released at a public forum, "Custom Kids?" Genetic Testing of Embryos, to be held on January 8 in Washington, DC. At the forum, an independent panel including former House Speaker Newt Gingrich, former Clinton White House Chief of Staff John Podesta and former National Institutes of Health Director Bernadine Healy will discuss the issues raised by genetic testing of embryos.

"New biomedical technologies have a tendency to sneak up on us," said Kathy Hudson, Ph.D., director of the Genetics and Public Policy Center. "This report and the policy forum are tools to catalyze broad public discussion about this profound use of genetic testing and aid decision-makers as they consider what policies can best keep pace with rapid advances in reproductive genetics."

The confluence of advances in human genetics and reproductive science has resulted in the ability to perform genetic tests on embryos produced by in vitro fertilization. This type of testing, known as preimplantation genetic diagnosis, involves the removal of one or two cells from the fertilized egg or embryo and analysis of the genetic material. Test results are then used to select the embryos to transfer to a woman's womb to initiate a pregnancy.

Preimplantation genetic diagnosis (PGD) is used currently by families seeking to have a child free from a specific inherited genetic disease or, less often, to have a child with specific genetic characteristics. By testing embryos before a pregnancy has begun, PGD can reduce the need to terminate a pregnancy in which a fetus is found to have a genetic mutation. PGD has been used to test for dozens of inherited diseases, to select embryos that will be a matched tissue donor for an ailing sibling and to select embryos based on sex.
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Contact: Rhoda Washington
rwashi10@jhu.edu
202-663-5979
Johns Hopkins Medical Institutions
8-Jan-2004


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