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Researchers recommend community advisory boards to prevent lapses in informed consent

oral Research.

The principles, which promote respect for individuals, beneficence and justice, require that enough information about the risk and benefits of studies be given in easily understandable ways and that subjects agree in writing that their participation is voluntary, the scientist said.

Community advisory boards are most useful when they are composed of community members who share a common identity, history, symbols and language and culture, he said.

For example, gay activists and gay HIV-affected individuals could serve on a CAB for an AIDS clinical trials group interested in recruiting participants from the gay community, Strauss said. Representatives from the African-American community could serve on a CAB that is linked to a study testing a comprehensive prenatal program for high-risk minority pregnant women.

HIV and AIDS-related boards already have proven useful in helping recruit patients, developing educational materials and convincing investigators to modify or stop studies board members felt were not entirely in participants best interests, he said. If CABS are to be effective, investigators need to be willing to listen to listen to and understand their concerns.


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Contact: David Williamson
david_williamson@unc.edu
919-962-8596
University of North Carolina at Chapel Hill
10-Dec-2001


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