Scheduled to launch as a pilot project in Spring 2005, patientINFORM (www.patientinform.org) is a free, online service dedicated to disseminating original medical research directly to consumers. A collaborative effort of leading voluntary health organizations, scholarly and medical publishers, medical societies, and information professionals, patientINFORM will provide patients and their caregivers with online access to up-to-date, reliable research for specific diseases. Participating voluntary health organizations will integrate the information into materials created for patients and link to free full-text research articles and additional selected material on journal websites.
"Not only will patientINFORM connect patients and their caregivers with the latest research, it will help them to put it into context. By making it easier to understand research findings, patientINFORM will empower patients to have a more productive dialogue with their physicians and make well-informed decisions about care," said Harmon J. Eyre, M.D., national chief medical officer of the American Cancer Society.
patientINFORM will initially focus on three diseases, cancer, diabetes, and heart disease, through the participation of three voluntary health organizations: The American Cancer Society (ACS), the American Diabetes Association (ADA), and American Heart Association (AHA); more than 20 publishers (see attached list); the International Association of STM Publishers; the Association of American Publishers/Professional & Scholarly Publishers; the Welch Medical Library at The Johns Hopkins University, and MedLinePlus (part of the National Institutes of Health's National Library of Medicine).