Researchers in Milwaukee at the Medical College of Wisconsin and Children's Hospital of Wisconsin Center for Advancement of Underserved Children studied outcomes data on 38,886 children with special healthcare needs (CSHCN) in the National Survey of CSHCN. They found that 13 percent of black parents and 17 percent of Hispanic parents were dissatisfied with their child's care, in contrast to only seven percent of white parents. They also found that over one-third of black or Hispanic parents reported problems with ease of using health care services, compared to less than one-fourth of white parents.
The team identified parental interview language as the key factor in Hispanic parents' dissatisfaction with care and ease of use of services. Hispanic/white disparities in both satisfaction with care and ease of use disappeared when a statistical adjustment was made for interview language. Similarly, they found inadequacy of family-centered care the key factor in black /white disparities in satisfaction with care. However, black/white disparities in ease of use persisted.
"Our results underscore the importance of providing adequate medical interpreter services for Latino families of CSHCN, and the significance of providing adequate family-centered care and making services easier to use for black families," says principal investigator Emmanuel M. Ngui, Dr.PH.
Dr. Ngui is an assistant professor of pediatrics, epidemiology, and health policy in the Center. The Center's director, Glenn Flores, M.D., FAAP, associate professor of pediatrics, co-authored the study.