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Research reveals emotional trauma parents face when a child is diagnosed with diabetes

y aware of the risk of possible complications in later life and some expected their lives to be affected by the diagnosis for a long time.

However, others felt positive and were relieved that their child was not going to die and that the diagnosis had enabled them to find a rational explanation for their child's symptoms.

"During the first year after diagnosis, parents rebuilt a new model of their world. Normality became a lifestyle adapted to incorporate the needs of a child with diabetes.

"However our findings raise doubts about whether many parents of children with diabetes ever fully accept the diagnosis. Even a year after diagnosis their emotions resurfaced when circumstances reminded them that their children were different from others and that they had a chronic and unpredictable illness."

Parents' comments included:

  • "You wake up in the night and it's the first thing that comes into your head. You wake up in the morning and it's the first thing that comes into your head." - Mother of a 13-year-old boy, 10 days after diagnosis.

  • "The actual reality hit me when he had to have insulinI was absolutely devastated." - Mother of a 12-year-old boy, five days after diagnosis.

  • "A lot of it, within the first few months, is just pure fearit's dealing with an illness that you know absolutely nothing aboutand the first month you're petrified, because you've got all this information coming at you, which you have to have, but you're thinking I am never going to come to terms with it." - Mother of a 13-year-old boy, four months after diagnosis.

  • "So things have changed slightly and, as they change after someone's died, there's a change in routine, a change in the way you do thingsIt's made me think of the life that used to be and the life that is now." Father of two-year-old boy, nine days after diagnosis.

  • "You look back and thinkhave I fed him rightand it's so stupid because yo
    '"/>


    • Contact: Lesley Lowes
    44-7-971-643-369
    Cardiff University
    18-Apr-2005


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