Survey reveals misperceptions about Alzheimer's among African-American and Hispanic caregivers

of their ethnic background, did not blame the delay in diagnosis on ethnic barriers.


Despite the role that assisted living facilities and nursing homes play in the continuum of care for people with Alzheimer's disease, the survey also revealed that significant proportions of African-American and Hispanic caregivers don't consider them an option. Among caregivers surveyed whose loved one is not currently living in an assisted living facility or nursing home, other race caregivers (32%) were nearly twice as likely to think that placing their loved one in a facility is an option in the future compared to African-American (19%) and Hispanic (21%) caregivers. Overall, caregivers who will not place their loved one in a facility felt that it is their responsibility to take care of their loved one (85%) or said they would feel guilty (60%).


Religion and spirituality tend to play an important role in the lives of caregivers, from seeking support to making healthcare decisions. The survey found that respondents who are religious are more likely to turn to religious leaders for support and let their religion influence their healthcare decisions than non-religious respondents (73% versus 31%). However, nearly two-thirds (63%) of non-religious respondents said that their spiritual beliefs have a significant impact on their healthcare decisions. The caregiving journey also made both religious and non-religious respondents feel more religious (36%), with African-American (48%) and Hispanic (35%) caregivers much more likely to feel this way than other race (26%) caregivers.

A majority of respondents overall did not feel they needed more or better support from their religious leaders, while about a third indicated they could have used more support from them. African-American

Contact: Judy Welage
Fleishman-Hillard, Inc.

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